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Feeling sub-optimal?
Are fatigue, low hemoglobin, and regular blood transfusions signs that you may be having a sub-optimal response to PNH treatment?
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A sub-optimal treatment response is when your paroxysmal nocturnal hemoglobinuria (PNH) is not being adequately controlled by your current treatment. This can result in PNH signs or symptoms that persist or reappear, affecting your quality of life.
But it doesn't have to stay this way.
Hear from doctors and patients
Through a series of videos, learn more about sub-optimal treatment responses and how they can be managed.
When is it a sign of a sub-optimal treatment response?
How do you talk to your doctor about a suspected sub-optimal treatment response?
What are the treatment options for a sub-optimal response?
When is it a sign of a sub-optimal treatment response?
How do you talk to your doctor about a suspected sub-optimal treatment response?
What are the treatment options for a sub-optimal response?
Hear how Catherine navigated a sub-optimal treatment response
See how Barry advocated for himself after his PNH diagnosis
Know the signs
Learn more about the most common PNH symptoms that can persist or reappear with a sub-optimal treatment response.
Learn the signs & symptoms
Know the signs
Learn more about the most common PNH symptoms that can persist or reappear with a sub-optimal treatment response.
Learn the signs & symptomsNot sure how to talk about a sub‑optimal treatment response?
This guide gives you questions and prompts to help you discuss your treatment.
Not sure how to talk about a sub‑optimal treatment response?
This guide gives you questions and prompts to help you discuss your treatment.
Explore your options
Work with your doctor to explore your treatment options.
See the treatment options
Explore your options
Work with your doctor to explore your treatment options.
See the treatment options
Not sure if you have a sub‑optimal treatment response?
Take the quiz